A Diagnosis of Alzheimer’s Disease Also Affects Family and Friends
A diagnosis of Alzheimer’s disease is not only difficult for the person but affects their spouse, children, other family members and anyone who cares for them. However, experts say it is important to remember the person who is most affected, and if they ask you what is wrong, you should be honest and simply tell them. It may even give the person a sense of relief to know they are not insane and there is an explanation as to what is happening to them.
That being said, medical professionals recommend if you can, have the person’s physician tell them but remember, a person afflicted with Alzheimer’s is forgetful, especially regarding new information. This means they will probably ask again (and again) what is wrong with them and it will be up to you to tell them. Doctors advise you to give a brief explanation.
Additionally, the rest of the family needs to be told as well as the person’s friends. Doctors say often he or she will appear to be healthy especially in the early stages so it is only fair to let others know so they do not mistake “odd” behaviors for craziness or meanness.
Another reason it is helpful for people to know about the person’s condition is they can do some research on how to best respond and communicate with their loved one or friend. The National Institute on Aging (NIA) says to:
Give simple, step-by-step instructions.
Repeat instructions and allow more time for a response. Try not to interrupt.
Not talk about the person as if he or she isn't there.
Not talk to the person using “baby talk” or a “baby voice.”
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Sources:
health.harvard.edu/mind-and-mood/what-should-you-tell-someone-who-has-alzheimers-disease
nia.nih.gov/health/alzheimers-caregiving-changes-communication-skills